About International Perthes Study Group

We are a group of 45 plus pediatric orthopaedic surgeons and researchers with a common goal of advancing knowledge and care of patients with Perthes disease. We seek to provide current, objective information to patients and their families and the medical community.

  
The goal of our website is to provide a forum to interact, share stories and support our mission. 

Why was the International Perthes Study Group Started?

Our group was started in March of 2012 by pediatric orthopaedic surgeons and researchers from all over US and other countries who felt the need to improve the care of patients with Perthes disease. We recognized that while Perthes disease has been known for over 100 years, many important questions about the disease remain unanswered. Our mission is to advance knowledge of Perthes disease and to disseminate objective, evidence-based information to the patients and their families and to the medical community.

What is unique about the International Perthes Study Group ?

The views represented by IPSG are not based on one surgeon’s or one institution’s views about Perthes (i.e. their preference). Our views are based on over 40 pediatric orthopaedic surgeons coming together to openly discuss and form consensus about what medical information is evidence-based and what is not regarding Perthes. One of our missions is to identify the areas of uncertainty about the disease and to address these questions through a collaborative research program.

What studies are being carried out by the International Perthes Study Group ?

Several studies are actively enrolling patients (see "Current Studies"). These include evaluating the role of advanced hip imaging called perfusion MRI as a new method to assess the severity of the disease, to predict how well the patient will recover, and to help guide treatment decision making. We are also enrolling patients to studies that compare the outcomes of common treatments for different age groups of patients with Perthes.

How can my child participate?

You can participate in these studies if you (your child) meet the study critieria. To find more information about these studies please contact us.